\u201cP\u0101rdo\u0161ana ir svar\u012bga, ta\u010du ne svar\u012bg\u0101ka par cilv\u0113kiem, kuru lab\u0101 str\u0101d\u0101jam vai ar kuriem m\u0113s str\u0101d\u0101jam. Un esmu p\u0101rliecin\u0101ta, ka tas ir galvenais m\u016bsu pan\u0101kumu faktors,\u201d saka Sandra Ivanauskiene, \u201cNorameda\u201d Speci\u0101l\u0101s medic\u012bnisk\u0101s pal\u012bdz\u012bbas noda\u013cas dibin\u0101t\u0101ja un vad\u012bt\u0101ja kop\u0161 2017. gada.<\/p>\n
\u201cNorameda\u201d Speci\u0101l\u0101s medic\u012bnisk\u0101s pal\u012bdz\u012bbas noda\u013ca akt\u012bvi darbojas reto slim\u012bbu, neirolo\u0123ijas un neonatolo\u0123ijas jom\u0101s.<\/p>\n
\u0160\u012bs unik\u0101l\u0101s \u201cNorameda\u201d noda\u013cas p\u0101rzi\u0146\u0101 ir specifisk\u0101s slim\u012bbas, un da\u017eas no t\u0101m ir \u0101rk\u0101rt\u012bgi reti sastopamas.Piem\u0113ram, alfa manozidoze, Lietuv\u0101 tika diagnostic\u0113ta tikai 3 pacientiem.<\/p>\n
Alfa manozidoze ir reta \u0123en\u0113tiska slim\u012bba, ko raksturo organisma \u0161\u016bnu nesp\u0113ja pien\u0101c\u012bgi sadal\u012bt noteiktas komplekso og\u013chidr\u0101tu grupas. Cukuru uzkr\u0101\u0161an\u0101s ietekm\u0113 daudzus organisma org\u0101nus un sist\u0113mas, tostarp centr\u0101lo nervu sist\u0113mu.<\/p>\n
\u201cNorameda\u201d speci\u0101l\u0101s medic\u012bnisk\u0101s pal\u012bdz\u012bbas noda\u013cai sadarb\u012bb\u0101 ar Vi\u013c\u0146as Universit\u0101tes slimn\u012bcas Santaras kl\u012bniku Reto slim\u012bbu koordin\u0101cijas centru izdevies nodro\u0161in\u0101t alfa manozidozes \u0101rst\u0113\u0161anu.<\/p>\n
Un pats p\u0101rsteidzo\u0161\u0101kais ir tas, ka visu tr\u012bs pacientu \u0101rst\u0113\u0161anu apmaks\u0101 valsts.<\/p>\n
\u201cTikl\u012bdz z\u0101les tiek re\u0123istr\u0113tas un nog\u0101d\u0101tas noliktav\u0101, s\u0101kas m\u016bsu darbs. Un tas ir tik daudzveid\u012bgs!\u201d st\u0101sta S. Ivanauskiene. “Vienlaikus varu run\u0101t ar Valsts slimokases darbiniekiem, z\u0101\u013cu ieguvumus p\u0101rrun\u0101t ar medi\u0137iem, atbild\u0113t uz slima b\u0113rna vec\u0101ku v\u0113stuli par nog\u0101d\u0101\u0161anu slimn\u012bc\u0101.”<\/p>\n
\u201cNodro\u0161in\u0101m z\u0101les ar\u012b priek\u0161laic\u012bgi dzimu\u0161iem z\u012bdai\u0146iem, kuri cie\u0161 no elpo\u0161anas mazsp\u0113jas vai apnojas, k\u0101 ar\u012b prezent\u0113jam jaunas paaudzes medikamentus Parkinsona slim\u012bbas \u0101rst\u0113\u0161anai. T\u0101p\u0113c katra diena ir at\u0161\u0137ir\u012bga, interesanta un, galvenais, sniedz lielu gandar\u012bjumu,\u201d st\u0101sta S. Ivanauskiene.<\/p>\n
S. Ivanauskiene ir paz\u012bstama k\u0101 speci\u0101l\u0101s apr\u016bpes aizs\u0101c\u0113ja Lietuv\u0101. Par savu galveno m\u0113r\u0137i vi\u0146a uzskata pacientu dz\u012bv\u012bbu aizsardz\u012bbu. Vi\u0146a st\u0101sta, ka ikviens \u0101rst\u0113tais pacients ir dzin\u0113jsp\u0113ks, pie\u0161\u0137irot j\u0113gu vi\u0146u noda\u013cas nopietnajam darbam.<\/p>\n
“Tom\u0113r neatkar\u012bgi no t\u0101, k\u0101 m\u0113s r\u016bp\u0113jamies par saviem pacientiem, \u0113tika ir m\u016bsu dienask\u0101rt\u012bbas aug\u0161gal\u0101.Mums j\u0101b\u016bt neatlaid\u012bgiem, k\u0101 ar\u012b \u013coti paciet\u012bgiem un iej\u016bt\u012bgiem,\u201d st\u0101sta S. Ivanauskiene.<\/p>\n
Nosl\u0113dzot interviju, \u201cNorameda\u201d Speci\u0101l\u0101s medic\u012bnisk\u0101s pal\u012bdz\u012bbas noda\u013cas vad\u012bt\u0101ja rezum\u0113: \u201cKatra cilv\u0113ka dz\u012bv\u012bba ir svar\u012bga, t\u0101p\u0113c katram pacientam j\u0101sa\u0146em atbilsto\u0161a \u0101rst\u0113\u0161ana, katram \u0101rstam j\u0101b\u016bt iesaist\u012btam proces\u0101, motiv\u0113tam un inform\u0113tam. Un, ja \u201cNorameda\u201d k\u013c\u016bst par akseleratoru, lai t\u0101 ar\u012b ir.<\/p>\n
J\u0101uzteic ar\u012b Lietuvas vesel\u012bbas aizsardz\u012bbas sist\u0113ma \u2013 t\u0101 ir viena no lab\u0101kaj\u0101m un att\u012bst\u012bt\u0101kaj\u0101m Eirop\u0101.Iedom\u0101jieties \u2013 3 no 3 miljoniem cilv\u0113ku ar \u0101rk\u0101rt\u012bgi ret\u0101m slim\u012bb\u0101m sa\u0146em valsts apmaks\u0101tu \u0101rst\u0113\u0161anu! Tiek samaks\u0101ts ar\u012b par augst\u0101k\u0101s kvalit\u0101tes medikamentiem Parkinsona slim\u012bbas \u0101rst\u0113\u0161anai!\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"
\u201cP\u0101rdo\u0161ana ir svar\u012bga, ta\u010du ne svar\u012bg\u0101ka par cilv\u0113kiem, kuru lab\u0101 str\u0101d\u0101jam vai ar kuriem m\u0113s str\u0101d\u0101jam. Un esmu p\u0101rliecin\u0101ta, ka tas ir galvenais m\u016bsu pan\u0101kumu faktors,\u201d saka Sandra Ivanauskiene, \u201cNorameda\u201d Speci\u0101l\u0101s medic\u012bnisk\u0101s pal\u012bdz\u012bbas noda\u013cas dibin\u0101t\u0101ja un vad\u012bt\u0101ja kop\u0161 2017. gada. \u201cNorameda\u201d Speci\u0101l\u0101s medic\u012bnisk\u0101s pal\u012bdz\u012bbas noda\u013ca akt\u012bvi darbojas reto slim\u012bbu, neirolo\u0123ijas un neonatolo\u0123ijas jom\u0101s. \u0160\u012bs unik\u0101l\u0101s […]<\/p>\n","protected":false},"author":220,"featured_media":7472,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","inline_featured_image":false,"_links_to":"","_links_to_target":""},"categories":[141],"tags":[],"_links":{"self":[{"href":"https:\/\/www.norameda.com\/lv\/wp-json\/wp\/v2\/posts\/7493"}],"collection":[{"href":"https:\/\/www.norameda.com\/lv\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.norameda.com\/lv\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.norameda.com\/lv\/wp-json\/wp\/v2\/users\/220"}],"replies":[{"embeddable":true,"href":"https:\/\/www.norameda.com\/lv\/wp-json\/wp\/v2\/comments?post=7493"}],"version-history":[{"count":0,"href":"https:\/\/www.norameda.com\/lv\/wp-json\/wp\/v2\/posts\/7493\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.norameda.com\/lv\/wp-json\/wp\/v2\/media\/7472"}],"wp:attachment":[{"href":"https:\/\/www.norameda.com\/lv\/wp-json\/wp\/v2\/media?parent=7493"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.norameda.com\/lv\/wp-json\/wp\/v2\/categories?post=7493"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.norameda.com\/lv\/wp-json\/wp\/v2\/tags?post=7493"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}